The condition may last from three to 17 years before death, with an average duration of eight years after diagnosis. You’ve probably heard of Alzheimer's disease. Coping with FTD can be scary, frustrating, and embarrassing for the patient and family members. The archives will be open to all members to read. The grieving begins long before physical death. So family members shouldn't take their loved one’s behaviors personally. FTD may be taking away my father, but I am gaining a great deal of respect for my mother for keeping her promise to … It is important, however, to understand that the behaviour exhibited by people with FTD is a result of the disease process in the brain as FTD … Tips for managing aggressive behaviour in FTD . Fronto Temporal Lobe Degeneration - A different kind of dementia, most often called FTD. Behaviours exhibited by people with FTD can be unpredictable and distressing. The average time between diagnosis and death is between four and ten years. Please know that in order to maintain a healthy, honest, and open dialogue this information will be shared amongst moderators. The NY Times recent article here is a pretty good read. Some symptoms can’t be controlled. Such groups allow caregivers to learn coping strategies and share feelings with others in the same position. Depending on the location of the damage, the disorder causes changes in social behavior, personality, and/or loss of language skills. It is a common misconception that dementia is a condition exclusively of old age. Problem solving, personality and common sense are all affected, along with memory, language comprehension and hearing. All moderators are available to be contacted about any group issue or concern. With this blog, I am hoping to offer information and insight into dealing with FTD, whether you have the disease, are a caregiver for someone who does or if you know or love someone who has the disease and want to learn more about it. And of course there are the articles about the spouses and children that are coping with the disease. FTD is the most common cause of dementia in people under the age of 50. If FTD is diagnosed early in the course of the disease, doctors can prescribe medications and help families prepare and cope with symptoms. Frontotemporal dementia (FTD) is a group of disorders that result from damage to the frontal and temporal lobes of the brain. Posts that discuss sexuality as related to FTD are requested to be non-explicit. Putting One Foot In Front of the Other is author Nancy Carlson’s candid blog post about coping with her husband’s diagnosis of frontotemporal degeneration (FTD). Added to the pain of dealing with an untreatable, incurable illness is the loss of person, insight, and empathy for others. Long-Term Care for People with FTD For many caregivers, there comes a point when they can no longer take care of the person with a frontotemporal disorder without help. 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